For those of you who have been following Awilda's story, I want to share a heart-warming report. A few days go, we received the following information from our agency in Santiago:
Thanks to the wide-spectrum antibiotics from our clinic that our doctors prescribed, the culture on Awilda came back negative. No pathogenic microorganisms were found. It only showed that she once had an infection, and that she once had osteomyelitis.
"Few children reach this stage -- most have to undergo amputation... We hope she will continue like this," said Dr. Vargas as she excitedly gave us the good news.
At this time, Awilda will take other medications for 5 days. They are treating her foot daily, and will do so over the period of one month. Afterwards, she will undergo an evaluation by an orthopedic doctor to determine what next steps should be taken. They will buy her some special inserts for her shoe to minimize irritation to the foot (they are getting estimates for them now).
Awilda is very close to the hearts of the Children International team that visited her in May, to the Santiago agency and to others here at the home office in Kansas City -- and of course to her sponsor. And, as evidenced by the generous donations and expressions of concern we have received, it's also clear she's gotten close to the hearts of our readers!
This is a remarkable case where saving Awilda's foot and eradicating her osteomyelitis (something doctors were saying was virtually impossible when we were there) is, I believe, directly attributable to the scrutiny and attention this case received from Children International and all of you, our friends on the blog.
[On June 7, Dayanara (our communications coordinator in Santiago, Dominican Republic) and Dr. Vargas, our agency doctor, accompanied Awilda and her mom, Jacqueline, to the Regional University Children’s Hospital for another exam. Dayanara shared the following report:]
The first thing Dr. Vargas (who had agreed to meet Awilda and her mother, Jacqueline) said upon entering the hospital was, “It looks like the hospital isn’t big enough for the population.”
We finally met Awilda, and in the middle of her greeting she said, “I’m a little nervous.” Dr. Vargas started joking with her to try to calm her. Then we continued talking about her situation, and Awilda told us, “My foot hurts a lot; I have a lot of infection. I’ve had to change my sock as many as three times a day.”
Dr. Vargas asked her, “Do you feel positive and ready for what the doctor tells you?” Awilda answered, “You’ve got to take it as it comes.”
[If you’ve never seen the conditions of public hospitals in countries with struggling economies, it can be overwhelming. Dayanara provided a vivid description of the scene that greeted her in the waiting room...]
Children in wheelchairs, crying; desperate mothers; a lot of heat; too many people – so many there weren’t enough chairs....When Dr. Vargas and I looked around the area where we were, Dr. Vargas observed, “God gives special children to strong people.”
While we were waiting, I tried to make time go by faster and break the tension by telling Awilda about the story Kelly had posted on CI’s blog. Awilda got very excited and said, “I’ll have to open an email account for all the people who will want to write me!” We all laughed. “As soon as I have money I’m going to an Internet center so I can see myself,” she added.
Finally we were able to enter the doctor’s office. He told us, “Osteomyelitis doesn’t heal; it can’t be cured. It stays alert while it messes things up.” Nutrition and rest are fundamental elements. The doctor feels that, overall, the child has alternated between good and bad progress.
[The good news, though, is that amputation is no longer being spoken of as the only alternative. There’s a fighting chance that Awilda’s foot can be saved.]
He also told us, “Were it not for the developmental stage she’s in, I would have fused her ankle; but that’s not feasible now.” He assured us that “Now the procedure will be slow. I’m happy that Children International is helping the child, because often the family can’t do what’s needed because of their financial needs.”
The doctor said that the most important part is the treatment, and he requested that CI cover Awilda’s transportation costs so she can go to the hospital instead of the having the volunteer who’s been caring for her foot at home continue to go to her house to treat her. He said that if the treatment is not done right the situation could worsen.
[Awilda will also be seeing a private specialist. Thanks to the ongoing support of her sponsor and generous donations from our readers, for the first time in years Awilda has a ray of hope.]
Would you like to share some words of encouragement with Awilda? Email them to blog@children.org and we'll make sure she gets them!
Terror flooded her eyes. “I don’t want them to cut off my foot....”
* * * *
It was Friday, and we were exhausted. My coworkers Jennifer, Deron, Sarah, Jacob, Erin and I had been in the Dominican Republic for a full week. It was a non-stop flurry of activity as we visited the areas served by Children International’s sponsorship program and interviewed children and their families. Our cameraman, Jacob, and I sat outside as Deron, one of Children International’s writers, interviewed one last family in their home.
“Well, I think we’re done,” I murmured to Jacob. Both of us felt a wave of relief. Although it’s always great to be in the field, the cases we deal with are often pretty emotionally overwhelming, and we were bone tired.
About that time, the rest of the group returned from their interview. Someone looked at the schedule. “Oops. Looks like we’ve still got one more to go....” Wearily, we got up and trudged off, making our way to a simple concrete house with a small covered porch.
But the dazzling smile that met us at the door soon chased our weariness away. Awilda, a pretty 14-year-old, invited us into her home. As we entered the living room, Awilda attempted to move the chairs around so we could be seated. I say "attempted"...because she was in a wheelchair. Quietly, Deron helped arrange the chairs and we were seated. We later learned that Awilda cleans the house and does the dishes, all from her wheelchair.
Awilda’s bubbly personality and quiet grace belied the years of tragedy she had endured. As I translated, Deron and Jennifer gently encouraged her to share her story with us, while Dr. Vargas, our agency doctor, sat on the sofa and filled in the details as needed.
Awilda was born with a herniation of the marrow of the spinal column. I know there’s a mile-long name for her medical condition, but I’m no doctor. The surgery her condition required damaged the nerves controlling her feet, legs, bladder and bowel function, leaving her a paraplegic who must wear diapers at all times.
As a testament to her determination, Awilda can get around on crutches pretty well. Years ago (so long ago she can’t remember the day it happened), she was playing outside and cut her foot. Hours later her mother got home and took her to the hospital, but by that time it was too late. Severe infection had set in.
Due to poor circulation and other side effects of her surgery, the wound never healed. The infection soon progressed to osteomyelitis, a severe infection of the bone. “The orthopedic surgeon is insisting that the best course of treatment is to amputate her leg,” said Dr. Vargas. But then, fiercely, she continued, “But we don’t want that.”
Terror flooded Awilda’s eyes. “I don’t want them to cut off my foot...” she whispered, desperately.
For a moment, Awilda was gone, and my own 14-year-old daughter back in Kansas City took her place.
“What are some of the things you like to do?” I heard Deron asking, snapping back to reality as I realized I had to translate. “I like to hear music…sing,” said Awilda. Then her smile turned to dejection, but she spoke without bitterness. “I like to dance, play ball...all the things I can’t do.”
“We are all hoping for the best, but...what will you do if – God forbid – they do have to amputate?” I asked, hesitantly.
Awilda seemed to try to form words, but instead she lapsed into silence. Tears welled up in her mother’s eyes. “She’s already said she’ll never leave the house again if they amputate her foot. She’s afraid people will look at her strangely,” she murmured.
My role as a translator was forgotten and replaced by the father within me. I tried to communicate with her that having or not having a foot has nothing to do with the beauty that emanates from her soul. That regardless of the outcome of her treatment, the Awilda that people know and love lives on the inside. I had to stop for a moment and choke back my emotions; Jennifer, Deron and I studiously avoided looking at each other, each of us struggling to retain our composure.
Awilda’s mom had been with us the whole time. Her dad, an unemployed bus driver, had just entered the room and now stood behind her. With a tenderness that was surprising for his gruff exterior, he broke the tension of the moment with a teasing remark. “I have some good news, though. She’s already got a boyfriend!”
The old sparkle returned to Awilda’s eyes. “I’m not lying,” she declared. “Yesterday I was over at my aunt’s house....There were ten boys flirting with me!”
It hardly seems fair that the only sensation Awilda can feel in her paralyzed feet is pain, which means the infection is much worse.
Awilda needs help urgently. Thanks to a special donation, she’s getting a new wheelchair. Her generous sponsor has gone above and beyond to make sure her basic needs are met. But she needs to be hospitalized so her infection can be brought under control. And she has dreams, too: she wants to study English...and computers...and guitar.
We always try to help with these critical cases we discover on our trips, but finding the funds among so many urgent needs can be a real challenge.
